WEBLINKS

The Neurological Alliance of Ireland (NAI)

Did you know that over 800,000 people in Ireland are living with a neurological condition? The Neurological Alliance of Ireland (NAI) is the national umbrella organisation for groups representing them.

ACT, The Ann Conroy Trust
Did you know ACT is a small but very active charity that depends on sponsors, donors, fundraisers and volunteers to help fund research and provide the support and education for those living with Chiari Malformation, Syringomyelia and associated conditions.

Chiari & Syringomyelia Foundation
CSF (Chiari & Syringomyelia Foundation, Inc.) is a non-profit organization that was founded in October 2007 with the goal of raising awareness and finding a cure for Chiari malformation (CM), syringomyelia (SM) and related disorders.

Syringomyelia is a hollow, fluid filled cavity (syrinx) in the spinal cord. It is not common, but sometimes develops months or years after injury. The cavity can slowly increase in size and extend up or down the spinal cord. As the syrinx expands, it can result in pain along with an increased loss of sensory and motor function.

Syringomyelia

The primary risk of syringomyelia is a loss of function above the level of the original spinal cord injury. For example, a person with a T SCI may complain to his or her doctor of numbness and weakness involving the extremities. The condition will progress with time and needs to be treated aggressively through surgical drainage. Often the condition of people with early evidence of a syrinx will be monitored to evaluate its progression.