Past meetings that were held over a few years…



A.G.M. Saturday 6th October 2018.






14th October – The A.G.M.

We have had a number of regional/local meetings this year to date. They are organized locally and are informal, it may be just a cup of tea and a chat but loads of info is exchanged at these meetings. 

We would like to see more of these meetings taking place as this is what we are A SELF HELP GROUP trying to resolve our issues for ourselves as a group.


We held a special joint celebration with guest speakers and founding members being invited.

.                 Syringomyelia & Chiari Malformation

                                   25th Anniversary Conference

This was a great day for all, with presentations by a number of medical professionals, followed by lively chat and a huge 25th birthday cake.